“I didn’t jump right away to calling it “cancer”. Initially, I talked [to my kids] about having a blood disorder, and that might have been more for me than them, I wasn’t quite ready to use the cancer word myself.”
Multiple myeloma: those are the words Cheryl, mother of three, did not want her children to associate with the idea of mom. After seeing her family doctor for fatigue and excruciating back pain that nearly lead to tears with movement, Cheryl was faced with a diagnosis that could change her and her family’s life significantly.
“I can do most things. But at the pace of 60% of what a normal person could do. Basically I operate like a 70-year-old. If you wanted to picture it, look at my mom, and I have about the get-up-and-go that she has.”
Multiple myeloma is a blood cancer that is very difficult to treat, and requiring different combinations of medications to manage. Because of this, Cheryl requires regular doctor appointments, and as a result of her many medications, has been in and out of hospitals for complications.
“I’m in constant treatment. I’ll do one thing until that stops working, and then they’ll switch me to something else, till they run out of things to switch me to. The treatment I’m on now results me in having very low immunity to anything […] over the holidays, I was in hospital for shingles, meningitis, and an intestinal infection. Last march, I was in hospital for a week with pneumonia, and a blood infection. I don’t just get a cold, I get in terrible situations. [It’s] eye opening to me in terms of just how unreliable my body has become. That’s a bitter pill to swallow.”
With three children, ages 12, 9, 5, Cheryl and her husband were struggling to balance everything from the medical appointments, working, and taking care of the family, all on their own.
“My daughter was going to a program 2 days a week, which was the only way during the initial stages of me getting really sick that I could even manage, and I was just trying to fit all my appointments on those 2 days. The other 3 days, I was basically lying around feeling crappy and useless.”
Living a distance away from family, and feeling the increasing burden of asking for help from friends, Cheryl was able to turn to the Nanny Angel Network (NAN) for support. NAN understands how vulnerable women can feel when asking for help, and strives to ensure that all mothers feel welcome.
“[It’s] like a sense of not being entirely alone – we don’t have a lot of family support that’s available on a regular basis, so that made it very nice, to feel like there was someone you could call. And also, initially, I was very concerned about finances, and the fact that this was available, free of charge, was a huge benefit. Having someone routinely is really beneficial because then you have this ray of hope […] that one day you’re going to have a couple of hours to go get groceries or something without dragging your kids with you.”
Once Nanny Angels were able to step in, not only was Cheryl able to find more time to focus on her health, but she was also able to spend more quality time with her family.
“During the summer, [NAN visits] coordinated frequently with the day that my 12-year-old had his baseball games, so I was able to actually go see some of his baseball games, because if I go to a game with the other two kids, then there’s no actually watching the game happening. So I was able to watch some of his games which was nice for both of us.”
Cheryl shared how isolated she felt living with a chronic illness. With a little over two years since her diagnosis, Cheryl is still finding that small gestures of kindness can go a long way.
“You know what, it gets a little old. It gets a little old in the second year. People want to think you’re just fine. And we just get so used to this kind of new normal. But last week we had someone out of the blue show up with a great plate of lasagna, and I was really kind of shocked at just how much I appreciated that. Having access to NAN is like that. Sure, we are managing on our own, but when someone cares enough to give of themselves just to make my life a little easier and add enjoyment to the lives of my kids, it is very special. It’s more than a few hours to catch up on some errands, or rest, or even spend one-on-one time with one of my kids. It’s a reminder that there is good in this world and that even if I can’t be there for my children there are others who will be.”
Text & Photos: Nanny Angel Network